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Kathryn’s Story

Please join me in the fundraising effort for this organization, the Lymphatic Research Foundation who strives to find a cure for Lymphedema.

In 2004, when a suburban hit me in an intersection and spun me around, my knees hit the steering wheel hard.  At the time, I didn’t have medical insurance; just the PIP insurance with your normal coverage of auto insurance policy.  When it was discovered a month after the accident that my swelling in my legs was simply not going to go away, it was only a beginning to a journey of learning how to be an advocate for myself.  The hospital granted me a grant for 10 treatments, but anyone who knows anything about lymphedema, 10 treatments is clearly not enough.  I was left on my own to wrap my legs and utilize a small pump and try to get the swelling to go down on my own without any insurance coverage.

By the time that I gained health insurance in 2008 through my employer when transitioning from a full time relief employee to a full time permanent employee, my legs were getting out of control and I was beginning to develop some pressure wounds.  After 3-6 months of physical therapy, aqua therapy, and transitioning from the ace looking compression bandages get up to the juxt-a-fit garments, and the approval of a flexitouch pump, I finally was able to have a better guide, control and understanding of what to do for maintaining my condition.

To this day, I still walk about with garments on both legs, although the right leg is far worse than the left, and tennis shoes that are way to big for me ordinarily (because of the wraps, I have to wear much larger shoes).  I have some sights on a new garment that comes in black and cheaper than the ones that I presently have, however, are supposed to work even better.  Hopefully, I won’t have the $500 annual garment purchase, plus the additional $100-200 I purchase each month in various specialized stockings that I have to wear with the garments.  Keeping my fingers crossed.  At least, if they are in black, they might be less noticeable.  For the past 7 years, everyone seemed to look at me with strangely while I continued to wear these garments day in and day out for the past 7 years, going on 8.

During the past years, I have been a strong advocate, learning more and more how to speak up for myself and try to make sure that I have the latest in the developments to ensure that there is continued progress without any set backs.  I’ve also promoted latest and greatest news on my Lymphedema in the News page on facebook and have become one of the admins in a patient’s only page (private) on facebook where we work to encourage and inspire one another.

In additon, I have had other lymphedema advocates come on my blogtalkradio show called, Beyond Words Live, to share updates about HR 4662 bill that is the national legislation concerning helping to defer the high costs of treatments towards the lymphedema patient.  It is critical that there is attention to this bill because, if lymphedema is left untreated, it poses a much higher health risk — such as the awfully painful pressure wounds that can run deep past the fatty tissues underneath the skin layer, exposing it to the opportunity for more infections, etc.

My story is one of many stories.  This is not lympoma or any form of cancer, although it can often result from having radiation treatments necessary to combat cancer.  Many other folks have many other causes — some trauma situated causes like mine — many others have other situations that have occurred to where the lymph nodes were damaged in some other way; and, in some cases, too, there are some hereditary links to this long lasting condition.

I come to you today to ask that, even if you can only contribute $5, it is $5 more towards the research that can be done to find a cure.  Thank you for reading my story and considering helping the cause.  I look forward to being able to tell the foundation that I exceeded my goal in raising funds for the much needed research.

Thank you!!

Kathryn

via Personal Fundraising Page for Kathryn Benefiting the Lymphatic Research of the Lymphatic Research Foundation!.

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The National Child Traumatic Stress Network provides a great fact sheet resource to Domestic Violence  and Children:  Questions and Answers for Domestic Violence Project Advocates, answering such questions as:

How do children react to domestic violence?

What are some typical short-term responses?

What about children’s responses in the long term?

What are the factors that help children recover?

What should parents tell their children about domestic violence?

How much information is enough but not too much?

What should a parent tell a child about the parent who was abusive?

How can advocates protect children from adult information?

How should parents respond to and cope with their children’s feelings about them?

What are some strategies for managing children’s behaviors that may occur in families with domestic violence?

How can advocates determine when a child needs more help?

and,

What is secondary trauma and how does it affect me?

 

 

Click on the link below to learn more:

http://www.nctsnet.org/sites/default/files/assets/pdfs/DomViolenceFactSheet_final.pdf

 

 

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Being a lymphedema patient myself, and having a wonderfully doting and caring boyfriend who acts as my daily caregiver, I can appreciate reading this lymphedema patient’s daughter’s point of view as a caretaker.

I love the title of the blog as well — DREAM FOR A CURE… 🙂  This is definitely a common theme among all lymphedema patients and caregivers because this lymphedema condition isn’t necessarily a temporary condition but one that is a lifetime commitment to keep it from becoming a dangerous and lethal situation if left untended.

Be sure to take a glimpse at this blog and learn more about this condition that so desperately needs a cure. 🙂

Dream For A Cure….

 

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$31,244 is the average income of 90% of the income earners, which has only seen a change of 1% during 1970-2008.  As you climb the chart to see other ranges of earnings, the population gets smaller and smaller, but the change of income earned during this same time frame is increasing higher and higher.  Something is very wrong with this picture.

How are folks supposed to hold on to hope for economic change in the future, if 90% of the population is seeing the littlest of changes?

via (Not) spreading the wealth – The Washington Post.

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Making lists doesn’t always put our world in order, but it certainly helps us to feel more orderly.

~ Anonymous

lol..

I don’t know how many lists that I have written over the years, but it has certainly made me rest better at nights very often so that I could have a renewed perspective of the upcoming day, as well as a renewed charge and dedication to eliminate as many of the items off of my lists.

How about yourself????

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One of the social sites that I go to has some lounges. They are pretty fun to get lost in, chat a bit, and listen to tunes from all eras (depending on the lounge that you are lounging around in).

There is one that I have been checking out lately and the owner has offered to train me on how to be a DJ. Can’t really pass up the opportunity to learn—we’ll know soon how much more involved it can be soon enough. I have to contact her on the Yahoo Messenger later today.

Is anyone out there an Internet DJ? Do you enjoy it? Do you have any tips or suggestions???

Look forward to hearing what folks have to say…..

It is certainly something different, and a whole new world to explore. Who knows where it will lead to—or, not! lol… It will be fun to explore, nontheless!

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Today I awakened at my Alzhiemer’s client’s home to find that she is distraught over her cat.   She threw her cat out the door after the cat appearing to have changed colors (say what?). She said that the cat turned pink.  After seeing the cat last night myself and wondering if the cat were pregnant because she was big around, I was wondering if she meant that the cat was about to have babies or what.  Still not sure what she meant, but I encouraged her to take a shower after engaging her in the Joel Olsteen show this morning and having some freshly squeezed orange juice and toast.

I put out some cat food while she was in the shower after not seeing the cat myself.  After cleaning up the home we left but she thanked me for everything as she was encouraged by Joel Olsteen’s power talk about minimizing our adversities and putting a magnifying glass towards the bigger and better things to come for us ahead – and, she agreed the the shower did make her feel refreshed as well.

We set out and went to Denny’s for breakfast and then off to Sun Harvest for some bits and pieces for things to make at home.  Poor thing.  She got in her mind that she was going to make her famed chicken soup and when I told her that we might not need to buy a whole chicken because it won’t fit into the toaster oven, she felt despair and disgust to her son who had taken apart her stove to keep her from setting the place on fire accidentally.  I tried to point out that she might be able to do the same in a crockpot and she toyed with the idea for a moment then said, “No, I just want my stove to be working!”.  We went around and put some of those ingredients back and searched for other possibilities that she could do — for instance instant oatmeal with the water boiled in the electric kettle, etc.

When we finally got home, we prepared some tuna salad for sandwiches this week and put away the groceries we did purchase.  After calling her son to tell him that he really must get the stove working and hanging up on him after a conversation about his love life that isn’t working out too hot, she pulled up a chair for me to sit in and said, “Come.  Talk to me!”

I sat down and I got a lecture about taking a chance with life and finding a man for me.  She called me a “gootah” (phonetically correct, but Jewish for a woman that does things for everyone else but herself).  She says that she wants me to go out and spend $100 on myself — a new dress, earrings, lipstick — and go dancing.  She says that I should get a sign to wear (like a nametag) and say that I am a free woman! (I can just see it now — women who have already been married and are now divorced and/or widowed must wear a “W” – – an “M” inverted for “woman” and signifying turning over a new leaf!  OMG…lol…..

As I finally was heading out the door after spending 30-1/2 hrs this weekend with her this weekend, she said to me, “You are a lovely woman.  I enjoy spending time with you because you make me feel sane and you are fun to be around.  You need to buy that dress, earrings, and lipstick — and, find something daring to do!”  It almost sounded like a preacher giving me a charge to do for the week ahead, as well as a challenge to find something daring to do.

Thank goodness she has Alzhiemers and she may not remember that she told me that next weekend or I might have to actually report to her the daring thing that I did this week; however, on the other hand, because she does have some degrees of Alzheimers, I might have the same lecture next week.  Oh, nooooooo!!! lol….

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