Feeds:
Posts
Comments

Archive for the ‘Research’ Category

Domestic violence cases seem to prevail in spite of all the efforts of the advocates across the United States and throughout the world; however, that doesn’t stop the advocates from continuing to try.  One focus has turned its head towards the affects upon childhood trauma.  One such foundation taking this focus in their hands is the Makers of Memories with its public policy initiative:

The Makers of Memories Public Policy Initiative, launched earlier this month in Washington DC, has already begun to develop momentum towards our two key objectives of:

1) raising awareness about the problem of childhood exposure to domestic violence; and

2) developing a set of solutions to address this problem.

Participants from a wide range of national nonprofit organizations have agreed to collaborate on the educational content and distribution of our documentary film project, 43 Million Secrets, and have contacted us to explore ways that we can work together to motivate leaders and policy makers to take action to provide support and assistance to children who experience domestic violence. We also are exploring programmatic initiatives with these organizations. Some of the individuals and organizations we have engaged to collaborate on our work are featured below in the images from our meeting in Washington DC on June 14.

via Makers of Memories.

Read Full Post »

Jamie Olive is my hero.  Last year, when he came to the United States and make a debut in the small, sleepy town in West Virginia, he clearly made an impact and difference in their lives.

This year, he might have taken on more than he could chew by tackling the enormous Los Angeles Community.  By the end of the last show, though, he gained the support of the new supertindent of the LA School system.

He’s got the right ideas though.  He wears his heart on his sleeve and is aiming to put things into good perspective with good eats, starting in the schools.

I thank him for his perseverance in keeping on the school systems.  I look forward to see the long range effects of his efforts.

What’s next for this hero?  Can’t wait to see what he’s got up his sleeve for the next leg of his crusade!

News | Jamie Oliver (US).

 

Read Full Post »

In 2004, when a suburban hit me in an intersection and spun me around, my knees hit the steering wheel hard.  At the time, I didn’t have medical insurance; just the PIP insurance with your normal coverage of auto insurance policy.  When it was discovered a month after the accident that my swelling in my legs was simply not going to go away, it was only a beginning to a journey of learning how to be an advocate for myself.  The hospital granted me a grant for 10 treatments, but anyone who knows anything about lymphedema, 10 treatments is clearly not enough.  I was left on my own to wrap my legs and utilize a small pump and try to get the swelling to go down on my own without any insurance coverage.

By the time that I gained health insurance in 2008 through my employer when transitioning from a full time relief employee to a full time permanent employee, my legs were getting out of control and I was beginning to develop some pressure wounds.  After 3-6 months of physical therapy, aqua therapy, and transitioning from the ace looking compression bandages get up to the juxt-a-fit garments, and the approval of a flexitouch pump, I finally was able to have a better guide, control and understanding of what to do for maintaining my condition.

To this day, I still walk about with garments on both legs, although the right leg is far worse than the left, and tennis shoes that are way to big for me ordinarily (because of the wraps, I have to wear much larger shoes).  I have some sights on a new garment that comes in black and cheaper than the ones that I presently have, however, are supposed to work even better.  Hopefully, I won’t have the $500 annual garment purchase, plus the additional $100-200 I purchase each month in various specialized stockings that I have to wear with the garments.  Keeping my fingers crossed.  At least, if they are in black, they might be less noticeable.  For the past 7 years, everyone seemed to look at me with strangely while I continued to wear these garments day in and day out for the past 7 years, going on 8.

During the past years, I have been a strong advocate, learning more and more how to speak up for myself and try to make sure that I have the latest in the developments to ensure that there is continued progress without any set backs.  I’ve also promoted latest and greatest news on my Lymphedema in the News page on facebook and have become one of the admins in a patient’s only page (private) on facebook where we work to encourage and inspire one another.

In additon, I have had other lymphedema advocates come on my blogtalkradio show called, Beyond Words Live, to share updates about HR 4662 bill that is the national legislation concerning helping to defer the high costs of treatments towards the lymphedema patient.  It is critical that there is attention to this bill because, if lymphedema is left untreated, it poses a much higher health risk — such as the awfully painful pressure wounds that can run deep past the fatty tissues underneath the skin layer, exposing it to the opportunity for more infections, etc.

My story is one of many stories.  This is not lympoma or any form of cancer, although it can often result from having radiation treatments necessary to combat cancer.  Many other folks have many other causes — some trauma situated causes like mine — many others have other situations that have occurred to where the lymph nodes were damaged in some other way; and, in some cases, too, there are some hereditary links to this long lasting condition.

via Personal Fundraising Page for Kathryn Benefiting the Lymphatic Research of the Lymphatic Research Foundation!.

Read Full Post »

One of the social sites that I go to has some lounges. They are pretty fun to get lost in, chat a bit, and listen to tunes from all eras (depending on the lounge that you are lounging around in).

There is one that I have been checking out lately and the owner has offered to train me on how to be a DJ. Can’t really pass up the opportunity to learn—we’ll know soon how much more involved it can be soon enough. I have to contact her on the Yahoo Messenger later today.

Is anyone out there an Internet DJ? Do you enjoy it? Do you have any tips or suggestions???

Look forward to hearing what folks have to say…..

It is certainly something different, and a whole new world to explore. Who knows where it will lead to—or, not! lol… It will be fun to explore, nontheless!

Read Full Post »

In Slate.com there was a cartoon that indicated the lack of US cooperation with the Global Warming issue.  With Al Gore’s campaign for the “Inconvenient Truth” that he has been doing in the past few years, you would think that the prospect of US’s involvement with the global warming issues would be higher.  What this cartoon fails to portray is the thought of what cooperation is being had by the other countries in this world.  I wonder what that would actually look like????

080102_ed.gif

 

 

 

Read Full Post »

Received Oprah’s “Today’s Mission Calendar Inspiration” email today wherein in the first paragraph it states about the January issue, “Let the hot air out of the self-esteem balloon–and find a more stable basis for carrying yourself through the world.”  What a great quote!

Wow!  Isn’t that a formidable quest at times???  A more stable basis for carrying oneself through the world???  After all, our world as we might know it gets shaken up all the time — divorce, marriage, becoming pregnant, realizing you can’t have children, in a domestic violence situation (whether it be physically or emotionally OR even if it doesn’t directly involve you but involves someone that you love or have as a friend), illnesses, deaths, etc.  We don’t plan on these events happening in our lives (directly or indirectly) but many are destined to be inevitable to happend, after all wherever there is life, there is also death around us.

For some, it can feel like a never ending cycle.  “Let me off of this roller coaster ride, please!” some will say; others, will not feel the affects of the roller coaster rides of life in general because they live ever so protected lives whereas many of us will feel small in comparison.  After all, how is it that they can have such even keel lives and others don’t?  I certainly don’t see “Hurt me!” written on the foreheads of victims nor do I see “Immortal!” written on the foreheads of those seemingly completely escaping the vast majority of the effects of the rash, bumby roller coaster ride.

How does one truly set out to find oneself more stable for carrying oneself through the world? 

* Having one job that can support yourself and your family?

* Advocating for the future of others?

* Having a job that allows you to afford to be able to spend more time with your family?

* Decluttering life’s “treasures” from one’s home?

* Having an income that will provide for a possibility that you actually have a savings for those emergencies and/or to set aside for retirement — so that one can truly enjoy retirement?

* Vowing to live healthier?

* Having opportunities for vacation time so that one can truly enjoy life?

* Restoring one’s faith in humanity?

* Having an opportunity to make time to enjoy doing things that one enjoys doing besides just working, sleeping, working, and sleeping?

What in the world is it going to take to make one more stable in order to carry themselves in the world?  What would it be for you?

For me, it would be to find that perfect balance in life where I can work to have the bills paid and a bit left over for savings, while having enough time to continue doing the things I enjoy doing — ie,  being with family and friends, blogging (go figure, huh?), artistic endeavors — as well as achieving the things that I want to do — ie, writing the book that is swarming in my head and waiting to be put into print, traveling to other countries that I haven’t been yet to (Belize, Equador, Scotland, Ireland, and Peru), building a modest home in the countryside, and finding a mate to share the rest of my life with one day (someone, that I can see us sitting in our rockers on our porch on our countryside home and just reminiscing about the good things in our lives when we become too old to move around like we had in the last 40-50 years of our lives).   Obviously, though, not all of those things can be accomplished in 2008 — or, can it?  We all must realize our limitations without letting our visions of our limitations stimy our growth. 

I am not sure that one can ever truly find that “perfect balance in life”, but surely one can attempt to try, can’t they?

Goals are nice, but getting them put into action seems daunting at times; sometimes, appropropriately determining one goal in particular is more important that setting many that will merely set us up for failure of being able to accomplish anything.  The purpose of having a New Year’s Resolution, after all, can be to light that fire of inspiration below ourselves to motivate ourselves to move forward from whatever level of instability that we have had in our lives in the past to empower us to move towards the level of stability that we all really truly desire.

Do you have a goal that you are going to put into action?  What might that be???

Read Full Post »

A fellow blogger wrote in his posting, Heathkit Reincarnates the Hero Robot, about Heathkit re-establishing themselves from the televisions, radios, and the like that they taught many folks about electronics through their kits and instructions.  Although they have had a long lapse of time, they seem to be making a come back.

I do so remember when my Dad made our first black and white television set from a Heathkit.  Now, they will be having a rebot of sorts available after around Feb 2008???  Count me in…. I’d love to give a hand at it….

Too cool!! 🙂

Read Full Post »

Older Posts »