Feeds:
Posts
Comments

Archive for the ‘Cancer’ Category

In 2004, when a suburban hit me in an intersection and spun me around, my knees hit the steering wheel hard.  At the time, I didn’t have medical insurance; just the PIP insurance with your normal coverage of auto insurance policy.  When it was discovered a month after the accident that my swelling in my legs was simply not going to go away, it was only a beginning to a journey of learning how to be an advocate for myself.  The hospital granted me a grant for 10 treatments, but anyone who knows anything about lymphedema, 10 treatments is clearly not enough.  I was left on my own to wrap my legs and utilize a small pump and try to get the swelling to go down on my own without any insurance coverage.

By the time that I gained health insurance in 2008 through my employer when transitioning from a full time relief employee to a full time permanent employee, my legs were getting out of control and I was beginning to develop some pressure wounds.  After 3-6 months of physical therapy, aqua therapy, and transitioning from the ace looking compression bandages get up to the juxt-a-fit garments, and the approval of a flexitouch pump, I finally was able to have a better guide, control and understanding of what to do for maintaining my condition.

To this day, I still walk about with garments on both legs, although the right leg is far worse than the left, and tennis shoes that are way to big for me ordinarily (because of the wraps, I have to wear much larger shoes).  I have some sights on a new garment that comes in black and cheaper than the ones that I presently have, however, are supposed to work even better.  Hopefully, I won’t have the $500 annual garment purchase, plus the additional $100-200 I purchase each month in various specialized stockings that I have to wear with the garments.  Keeping my fingers crossed.  At least, if they are in black, they might be less noticeable.  For the past 7 years, everyone seemed to look at me with strangely while I continued to wear these garments day in and day out for the past 7 years, going on 8.

During the past years, I have been a strong advocate, learning more and more how to speak up for myself and try to make sure that I have the latest in the developments to ensure that there is continued progress without any set backs.  I’ve also promoted latest and greatest news on my Lymphedema in the News page on facebook and have become one of the admins in a patient’s only page (private) on facebook where we work to encourage and inspire one another.

In additon, I have had other lymphedema advocates come on my blogtalkradio show called, Beyond Words Live, to share updates about HR 4662 bill that is the national legislation concerning helping to defer the high costs of treatments towards the lymphedema patient.  It is critical that there is attention to this bill because, if lymphedema is left untreated, it poses a much higher health risk — such as the awfully painful pressure wounds that can run deep past the fatty tissues underneath the skin layer, exposing it to the opportunity for more infections, etc.

My story is one of many stories.  This is not lympoma or any form of cancer, although it can often result from having radiation treatments necessary to combat cancer.  Many other folks have many other causes — some trauma situated causes like mine — many others have other situations that have occurred to where the lymph nodes were damaged in some other way; and, in some cases, too, there are some hereditary links to this long lasting condition.

via Personal Fundraising Page for Kathryn Benefiting the Lymphatic Research of the Lymphatic Research Foundation!.

Read Full Post »

We all have big changes in our lives that are more or less a second chance.

– Harrison Ford

 

Isn’t it a great way to look at the changes in our lives?????? 🙂

Read Full Post »

Today, on May 21, 2007, I heard from the TLP Foundation wherein they confirmed that the last that they have heard, there has been more than 1 million greeting cards received for his birthday. Keep them coming!!! 😀

See “Happy Birthday, Shane?” for more about the whole story and where to send your greeting card to him today!

Read Full Post »

How many ways can you say “Happy Birthday” to an eight year old who is also a cancer patient???

Received this in the email today.  It has a direct link, too, to his site encouraging everyone to massively cooperate and send this young guy a means to get his wish for breaking the Guiness World Records for the most cards received.

The email:

 Shane Bernier is a cancer patient at the Children’s Hospital of eastern Ontario. 

He turns eight on May 30. His dream is to set a record for the most birthday cards ever received.

It will be a wonderful sign of support from the EMS community to help him reach his goal, so please consider sending him a birthday greeting.

His address is:

Shane Bernier
Box 484
Lancaster
Ontario
K0C 1N0

For more information go to : http://shanebernier.ca/

For more information about this feat that is set out before Shane Bernier, please read also Birthday Cards for Shane Bernier which confirms that he is indeed setting out to achieve this milestone.

Best of luck to you Shane, and many wishes for your future “Happy Birthday” card accomplishment, traveling to you from all over the world!!

Read Full Post »

Heard it so on the news, but I couldn’t find any support of the story linked on their sites; didn’t find it supported on the official Lance Armstrong website as well — at least, initially!!

I’ll continue to look for support of the news announcement on the news sites….

 

In the meantime, though, I did find support of it on a blogsite from a New Zealand blogger that did make reference to it on his blogsite called, “WinosAndFoodies”. He is even sporting a yummy looking Lemon Meringue Tart (Pie) on his site.

 

Supportinglaf_2c

 

Hope you will show your support of a Livestrong Yellow Day, whether or not it is an official day!! 😀

Many people are affected by cancer each and every day;

whether it be directly or indirectly.dscn1519-042707-320×240.jpg

 

Livestrong Day 2007

 

Livestrong Day Events in a City Near You!

 

Insofar as Austin, TX, some of the events include —

Central Market

24 Fitness Locations

Iron Bartending Competition Benefiting LAF

 

 

Just uploaded a couple of days ago, a moving LiveStrong Mother’s Day story video on YouTube….

[YouTube=http://www.youtube.com/watch?v=1wpbkCoHfZ4]

 

Here is a LiveStrong Message on YouTube:

[YouTube=http://www.youtube.com/watch?v=ibKkOXFZ44o]

 

 

 

 

 

 

 

 

 

 

 

Read Full Post »