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Archive for June, 2011

Kathryn’s Story

Please join me in the fundraising effort for this organization, the Lymphatic Research Foundation who strives to find a cure for Lymphedema.

In 2004, when a suburban hit me in an intersection and spun me around, my knees hit the steering wheel hard.  At the time, I didn’t have medical insurance; just the PIP insurance with your normal coverage of auto insurance policy.  When it was discovered a month after the accident that my swelling in my legs was simply not going to go away, it was only a beginning to a journey of learning how to be an advocate for myself.  The hospital granted me a grant for 10 treatments, but anyone who knows anything about lymphedema, 10 treatments is clearly not enough.  I was left on my own to wrap my legs and utilize a small pump and try to get the swelling to go down on my own without any insurance coverage.

By the time that I gained health insurance in 2008 through my employer when transitioning from a full time relief employee to a full time permanent employee, my legs were getting out of control and I was beginning to develop some pressure wounds.  After 3-6 months of physical therapy, aqua therapy, and transitioning from the ace looking compression bandages get up to the juxt-a-fit garments, and the approval of a flexitouch pump, I finally was able to have a better guide, control and understanding of what to do for maintaining my condition.

To this day, I still walk about with garments on both legs, although the right leg is far worse than the left, and tennis shoes that are way to big for me ordinarily (because of the wraps, I have to wear much larger shoes).  I have some sights on a new garment that comes in black and cheaper than the ones that I presently have, however, are supposed to work even better.  Hopefully, I won’t have the $500 annual garment purchase, plus the additional $100-200 I purchase each month in various specialized stockings that I have to wear with the garments.  Keeping my fingers crossed.  At least, if they are in black, they might be less noticeable.  For the past 7 years, everyone seemed to look at me with strangely while I continued to wear these garments day in and day out for the past 7 years, going on 8.

During the past years, I have been a strong advocate, learning more and more how to speak up for myself and try to make sure that I have the latest in the developments to ensure that there is continued progress without any set backs.  I’ve also promoted latest and greatest news on my Lymphedema in the News page on facebook and have become one of the admins in a patient’s only page (private) on facebook where we work to encourage and inspire one another.

In additon, I have had other lymphedema advocates come on my blogtalkradio show called, Beyond Words Live, to share updates about HR 4662 bill that is the national legislation concerning helping to defer the high costs of treatments towards the lymphedema patient.  It is critical that there is attention to this bill because, if lymphedema is left untreated, it poses a much higher health risk — such as the awfully painful pressure wounds that can run deep past the fatty tissues underneath the skin layer, exposing it to the opportunity for more infections, etc.

My story is one of many stories.  This is not lympoma or any form of cancer, although it can often result from having radiation treatments necessary to combat cancer.  Many other folks have many other causes — some trauma situated causes like mine — many others have other situations that have occurred to where the lymph nodes were damaged in some other way; and, in some cases, too, there are some hereditary links to this long lasting condition.

I come to you today to ask that, even if you can only contribute $5, it is $5 more towards the research that can be done to find a cure.  Thank you for reading my story and considering helping the cause.  I look forward to being able to tell the foundation that I exceeded my goal in raising funds for the much needed research.

Thank you!!

Kathryn

via Personal Fundraising Page for Kathryn Benefiting the Lymphatic Research of the Lymphatic Research Foundation!.

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The National Child Traumatic Stress Network provides a great fact sheet resource to Domestic Violence  and Children:  Questions and Answers for Domestic Violence Project Advocates, answering such questions as:

How do children react to domestic violence?

What are some typical short-term responses?

What about children’s responses in the long term?

What are the factors that help children recover?

What should parents tell their children about domestic violence?

How much information is enough but not too much?

What should a parent tell a child about the parent who was abusive?

How can advocates protect children from adult information?

How should parents respond to and cope with their children’s feelings about them?

What are some strategies for managing children’s behaviors that may occur in families with domestic violence?

How can advocates determine when a child needs more help?

and,

What is secondary trauma and how does it affect me?

 

 

Click on the link below to learn more:

http://www.nctsnet.org/sites/default/files/assets/pdfs/DomViolenceFactSheet_final.pdf

 

 

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Domestic violence cases seem to prevail in spite of all the efforts of the advocates across the United States and throughout the world; however, that doesn’t stop the advocates from continuing to try.  One focus has turned its head towards the affects upon childhood trauma.  One such foundation taking this focus in their hands is the Makers of Memories with its public policy initiative:

The Makers of Memories Public Policy Initiative, launched earlier this month in Washington DC, has already begun to develop momentum towards our two key objectives of:

1) raising awareness about the problem of childhood exposure to domestic violence; and

2) developing a set of solutions to address this problem.

Participants from a wide range of national nonprofit organizations have agreed to collaborate on the educational content and distribution of our documentary film project, 43 Million Secrets, and have contacted us to explore ways that we can work together to motivate leaders and policy makers to take action to provide support and assistance to children who experience domestic violence. We also are exploring programmatic initiatives with these organizations. Some of the individuals and organizations we have engaged to collaborate on our work are featured below in the images from our meeting in Washington DC on June 14.

via Makers of Memories.

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The inaugual event is going to be about 35 miles west of Austin, off of Hwy 290 in the McDade area, from September 24-25, 2011.  More events also planned from February 11th – April 1st, 2012.

This should all be very interesting place to explore.  The hard economic times certainly lend itself to a need to escape into the mystical fairie tale times that the Sherwood Celtic stories that we have only read about in the past.  No longer, will Austinites have to think that the closest places for Ren Faires to be in Tomball/Magnolia, near Houston, or up towards the Waco area.

Have you ever been to a Renaissance Fair in the past?  Would you sign up for the upcoming events at this place?

Check out the link below for more details.

Sherwood Forest Faire – Medieval Renaissance Park in Lost Pines between Austin and Houston..

 

Tickets:

https://tix.extremetix.com/Online/?siteID=2462&cartID=ef3f66d9-0020-4637-a48b-9cbac571c7c8&eventID=28825

 

 

Facebook Page:

http://www.facebook.com/SWFF2010?sk=app_212371285462773

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Jamie Olive is my hero.  Last year, when he came to the United States and make a debut in the small, sleepy town in West Virginia, he clearly made an impact and difference in their lives.

This year, he might have taken on more than he could chew by tackling the enormous Los Angeles Community.  By the end of the last show, though, he gained the support of the new supertindent of the LA School system.

He’s got the right ideas though.  He wears his heart on his sleeve and is aiming to put things into good perspective with good eats, starting in the schools.

I thank him for his perseverance in keeping on the school systems.  I look forward to see the long range effects of his efforts.

What’s next for this hero?  Can’t wait to see what he’s got up his sleeve for the next leg of his crusade!

News | Jamie Oliver (US).

 

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I got the opportunity to view this new social site through a *.tv broadcast today.  It poses some interesting opportunities, although I’m not sure that I would like to be on a webcam throughout the experience.  lol…

On this page is the interactive tour link so that you, too, can have an opportunity to view the interactive nature of this project in development that can take social media networking to an all new level.  Take a look and decide for yourself.

They’re currently testing with a small number of folks before it’s ready for everyone; however, you can sign up to be notified on this page too once it is released for public interaction and exploration.

I’m looking forward to it; how about you?

 

 

 

The Google+ project: real life sharing, rethought for the web..

 

 

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Marsys’ Law created as a result, in California, when a woman was lured back to her ex-boyfriend who claimed wanted to get back with her and make up but in actuality had a shotgun ready to kill her when she entered his home.   This event was a great opportunity to learn more.

PASADENA – The Pasadena Police Department will host a free Crime Victims’ Clinic from 8:30 a.m. to noon Saturday in the second floor assembly room at the department headquarters, 207 N. Garfield Ave.

The clinic will offer information on the Crime Victims’ Bill of Rights Act (Marsy’s Law) passed in 2008, giving victims of crimes and their families 17 constitutional rights.

Workshop participants will include the Pasadena Police Department, Justice for Homicide Victims, Pasadena Superior Court, L.A. District Attorney’s Office, Bailiff’s Office, Victim-Witness Assistance Program; Peace Over Violence and Crime Stoppers.

The clinic is being coordinated, organized and planned by Police Specialist III Patricia Magallanes.

via Crime victims’ rights to be discussed at police clinic – Pasadena Star-News.

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