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Archive for the ‘Volunteering’ Category

 

 

 

Being a lymphedema patient myself, and having a wonderfully doting and caring boyfriend who acts as my daily caregiver, I can appreciate reading this lymphedema patient’s daughter’s point of view as a caretaker.

I love the title of the blog as well — DREAM FOR A CURE… ūüôā ¬†This is definitely a common theme among all lymphedema patients and caregivers because this lymphedema condition isn’t necessarily a temporary condition but one that is a lifetime commitment to keep it from becoming a dangerous and lethal situation if left untended.

Be sure to take a glimpse at this blog and learn more about this condition that so desperately needs a cure. ūüôā

Dream For A Cure….

 

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Stumbled upon this site from a friend on facebook the other day.  It has a lot of interesting features, including (but, not necessarily limited to) the below:

Legislative Advocacy

As an organization fully committed to advancing justice for consumers, NACA is actively engaged in promoting a fair and open marketplace that forcefully protects the rights of consumers, particularly those of modest means.

Today the fundamental consumer protections that we have depended upon to ensure fairness and justice are under attack. This can be seen in the watering down of federal regulations, the prevalence in consumer contracts of forced arbitration clauses that deny consumers their right to be heard by an unbiased court or jury of their peers, and the ever growing presence of unscrupulous and deceptive business practices that trip and trap consumers into predatory loans, unscrupulous fees, and unconscionable contract terms.

NACA is focused on promoting an agenda that lays the groundwork for rebuilding a consumer justice system that will be based on our nation’s fundamental sense of fairness, equity and honesty. Our agenda items include ensuring that the Consumer Financial Protection Bureau holds corporations and businesses accountable for their predatory practices, fighting to ban the unfair practice of forced arbitration, staunching the swelling tide of foreclosures, strengthening laws that protect consumers from predatory mortgage and unsecured credit lending, unfair debt collection practices, and abusive credit reporting.

via Legislative Advocacy ‚Äď Consumer Advocates – NACA | National Association of Consumer Advocates.

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In 2004, when a suburban hit me in an intersection and spun me around, my knees hit the steering wheel hard. ¬†At the time, I didn’t have medical insurance; just the PIP insurance with your normal coverage of auto insurance policy. ¬†When it was discovered a month after the accident that my swelling in my legs was simply not going to go away, it was only a beginning to a journey of learning how to be an advocate for myself. ¬†The hospital granted me a grant for 10 treatments, but anyone who knows anything about lymphedema, 10 treatments is clearly not enough. ¬†I was left on my own to wrap my legs and utilize a small pump and try to get the swelling to go down on my own without any insurance coverage.

By the time that I gained health insurance in 2008 through my employer when transitioning from a full time relief employee to a full time permanent employee, my legs were getting out of control and I was beginning to develop some pressure wounds.  After 3-6 months of physical therapy, aqua therapy, and transitioning from the ace looking compression bandages get up to the juxt-a-fit garments, and the approval of a flexitouch pump, I finally was able to have a better guide, control and understanding of what to do for maintaining my condition.

To this day, I still walk about with garments on both legs, although the right leg is far worse than the left, and tennis shoes that are way to big for me ordinarily (because of the wraps, I have to wear much larger shoes). ¬†I have some sights on a new garment that comes in black and cheaper than the ones that I presently have, however, are supposed to work even better. ¬†Hopefully, I won’t have the $500 annual garment purchase, plus the additional $100-200 I purchase each month in various specialized stockings that I have to wear with the garments. ¬†Keeping my fingers crossed. ¬†At least, if they are in black, they might be less noticeable. ¬†For the past 7 years, everyone seemed to look at me with strangely while I continued to wear these garments day in and day out for the past 7 years, going on 8.

During the past years, I have been a strong advocate, learning more and more how to speak up for myself and try to make sure that I have the latest in the developments to ensure that there is continued progress without any set backs. ¬†I’ve also promoted latest and greatest news on my Lymphedema in the News page on facebook and have become one of the admins in a patient’s only page (private) on facebook where we work to encourage and inspire one another.

In additon, I have had other lymphedema advocates come on my blogtalkradio show called, Beyond Words Live, to share updates about HR 4662 bill that is the national legislation concerning helping to defer the high costs of treatments towards the lymphedema patient. ¬†It is critical that there is attention to this bill because, if lymphedema is left untreated, it poses a much higher health risk — such as the awfully painful pressure wounds that can run deep past the fatty tissues underneath the skin layer, exposing it to the opportunity for more infections, etc.

My story is one of many stories. ¬†This is not lympoma or any form of cancer, although it can often result from having radiation treatments necessary to combat cancer. ¬†Many other folks have many other causes — some trauma situated causes like mine — many others have other situations that have occurred to where the lymph nodes were damaged in some other way; and, in some cases, too, there are some hereditary links to this long lasting condition.

via Personal Fundraising Page for Kathryn Benefiting the Lymphatic Research of the Lymphatic Research Foundation!.

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One of the most creative and latest/greatest social sites being placed out on the world wide web recently is a site called, Soul Needs!

It really works on getting to know people for their wholesome goodness, as well as a place for each and every person to come and explore fitness by way of the mind, body and soul.

Create your own profile.

Explore the “Circles”, various communities centered around specific topics or needs for fulfillment — or, create your own.

Take the many quizes available on the site to explore where you stand with your mind, body, and soul.

There are also other areas in development — entertainment and events, to begin with.

If you are wanting something a little more fulfilling than the social sites you have been to lately, you really should take the time to explore this more by clicking on the link below:

 

SoulNeeds Beta – Dashboard – txbluebonnet.

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On May 15, 2010, I inteviewed Hadayai, who talked more about Muslim women and their survivorship:

Domestic violence knows no age, race, gender, sexual orientation, etc – including no culture is immune from domestic violence occurring in their relationships as well. The guest today also has her own show on BTR, but comes to my show to talk more about her story and how it relates in the Muslim Community. In fact, she states that “any association with feminism is alienating in Muslim cultural circles … and… confidence from women has been slow in coming.” We hope to help demonstrate the need of understand cultural struggles when trying to help those victimized by domestic violence situations to seek help. Please join us while Hadayai talks about her mission to enact upon her, simple and huge, vision: “Give Muslim women the tools to change their climate by changing themselves” stemming out of her own experience with domestic violence and her compelling need to fill a need to help others in similar situations. Her goal through the program she founded in Georgia (here in the United States) in 1997 is to “end the silence about domestic violence and to help abused Muslim women and children with shelter, food, and clothing, as well as teach them strategies for self sufficiency – how to be confident in speech, mannerisms, and body language.” Come prepared to understand additional dimensions of struggles found in those encountering domestic violence.

BEYOND WORDS LIVE – MEET HADAYAI 05/15 by Kat X Beyond Words | Blog Talk Radio.

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On April 3, 2010, I hosted this radio show with Denise Wolford.  Just catching up on what I have been doing in the past few years:

I’m very excited to present to you a show with Denise Wolford who has been dedicated to working towards ending domestic violence through her ministry, All Women Marching for Hope! Denise will share with us her story that led her to where she is today, as well as tell us more about her ministries for hope for freedom from domestic violence in this world. Just about a month ago, on March 6th, she was found marching in the streets of the community of Dallas, along with many supporters and Carolyn Thomas. She will be taking their march in other communities as well. Learn more about domestic violence and some avenues for proactive action. Look forward to seeing you at the show on April 3, 2010!

BEYOND WORDS LIVE – MEET DENISE WOLFORD 04/03 by Kat X Beyond Words | Blog Talk Radio.

 


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Just happened upon this today. ¬†You’ll just need to read the article to understand the full scope:

 

Reposted article for quick viewing here:


In case you hadn’t heard the latest news to make you doubt the basic humanity of the people around you, several years ago¬†a 16-year-old cheerleader from Silsbee High School in Texas was assaulted¬†at a party by Rakheem Bolton, a basketball player and football star whom she says held her down and raped her. Bolton later pleaded to a charge of misdemeanor assault, but here’s the part that’s going to make you want to set things on fire: Not only did the school allow him back on the basketball team, they told the girl it was her responsibility to lay low, stay away from the lunchroom and not go to Homecoming. And when the girl refused to cheer specifically for her attacker at games — while still cheering for the team at large — Silsbee High School officials did something so fundamentally awful that they might as well be twisting their mustaches:¬†They threw her off the cheerleading squad.

She challenged the school in court and recently lost, so now in addition to suffering a horrendous assault, predictably being branded a “slut” in her community, and getting thrown off the cheerleading team for refusing to shout “put it in” at her attacker (seriously), her family has been ordered to¬†pay $45,000 in legal fees¬†to the school.

Jason Ho, an illustrator and Assistant Editor at Bongo Comics wants to help, so he is¬†drawing custom sketches at $20 a pop¬†and donating the proceeds to the girl’s legal costs. They are both very attractive sketches and a small way to help someone who has been failed disgracefully over and over by the indecency and institutional cowardice of seemingly everyone around her.

“The less I say about it, the better, cause if I start talking about it, I’m just gonna get mad,” Ho wrote on his blog. “Suffice it to say, this is utterly unacceptable, and if we can help, we should.”

You can read more of the profoundly depressing details¬†here, but the courage of the young woman cannot be overstated for speaking out about an assault by a football star in a culture that disproportionately values sports prowess (you’ve seen¬†Friday Night Lights, right?) and is quick to blame victims — even¬†11-year-old girls¬†— for their own sexual assaults.

Thanks to Silsbee High School and Superintendent Richard Bain Jr., for rewarding the young woman’s bravery with the tacit message to shut up because winning sports games is more important than her assault, and for affirming yet again to girls and women¬†around the world¬†that seeking justice for a sexual assault is the fastest and easiest way to get victimized all over again, except in more public and expensive ways.

Sincere thanks to Ho — an artist we’ve featured on ComicsAlliance¬†before¬†— and¬†Help the Cheerleader, which is working directly with the girl and her family to raise money for both the school’s court fees and their own. Donations are being accepted via Paypal¬†here.

Read More: http://www.comicsalliance.com/2011/06/08/cheerleader-texas-rape-sketches/#ixzz1OuQWnMyG

 

 

 

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